Daughters living with Cystic Fibrosis.
One Maynooth mother of two daughters with Cystic Fibrosis, is continuing her campaign for their access to Kaftrio - described as a wonder drug.
The health of Gráinne Uí Lúing's children, Caoimhe (8) & Fiadh (6), alongside 33 other children living with CF is being seriously compromised.
The children - aged between 6 and 11 - were refused a life changing Cystic Fibrosis drug.
The drug is being provided to children in Ireland, but for 35 children with a particular genotype have yet to gain access, due to a pricing disagreement between the HSE and drug manufacturer, Vertex Pharmaceuticals.
In September, parents & children including Gráinne's two daughters protested outside Leinster House, demanding the two bodies reach an agreement.
Gráinne notes her youngest child, Fiadh has been on "rounds & rounds of medication" since her children started back at scool.
She noted the 6 year-old "will keep picking up infections" including croup - which Grainne says takes "months & months" to clear.
On Friday's 'Kildare Focus' Gráinne spoke about the work many Co. Kildare TDs were doing to help gain access:
Lidl Secures Planning Permission For New €4.5 Million Store In Sallins
Kildare Senator Calls For Reform Of National Planning Framework To Address Housing Crisis
Over 2,800 New Cars Registered In Kildare So Far This Year, 610 EVs
18 Motorists Arrested Across The County In The Past Week For Driving Under The Influence
Bright & Warm Weather To Continue As Parts Of Kildare Expected To Reach 18°C
Kildare Parents Among Those Protesting Outside Dail Today Over Lack Of Special Needs School Places
Cabinet Signs Off On Changes To Prevent Significant LPT Jumps
3,689 Patients Left Naas General Hospital ED Last Year Before Being Treated
